From founders Bill Guthy and Victoria Jackson:
The Guthy-Jackson Charitable Foundation is dedicated to funding research in the search to understand the pathophysiology and biochemistry of NMO Spectrum Disease. The decision to create our Foundation came from a personal family crisis in June 2008 when our daughter Ali was officially diagnosed with NMO. Our Foundation is passionate in its support of providing opportunities to develop programs for prevention, clinical treatments, and an eventual cure for this rare and often misunderstood disease.
We are committed to providing an online community for those who have been diagnosed with NMO, as well as providing centralized information resources for individuals who want to learn more about this rare disease.
For those who want to donate to the cause of this misunderstood and often misdiagnosed disease, The Guthy-Jackson Charitable Foundation will dedicate 100% of all funding gifts to basic science research centers.
For more information on MS/NMO:
What You Need to Know
A Path to Progress: Join Us
Over the years since our family faced a personal crisis and we were given slim odds for overcoming it, we’ve learned firsthand about what can be accomplished by refusing to give in to fear — no matter how afraid or alone our situation might make us feel. No matter how bleak or even hopeless, we don’t have to remain helpless. Whenever we dare to reach out beyond our known limits, we find support from others. Whenever we take action and dare to ask questions others call unanswerable, we find solutions.
As we continue to expand our Saving Each Other community, we’ve also learned from our path to progress that our discoveries fuel those of others. What was once a rare “orphan” disease ignored by science and written off as a death sentence, is now a treatable illness. The landscape has changed. Drug companies more and more recognize that rare diseases have provided some of the most important medical breakthroughs on record. The therapies they're funding are finding new and more applications.
The bottom line is that no matter what the challenge at hand, we are all really in this together. And by sharing our hopes, dreams, and discoveries we can live up to the ideal of truly saving each other.
